We have had lots of great news in our almost 9 years of dealing with CF. God has worked in so many ways thru our Lexi Loo. He healed her liver, preventing her from having to have a liver transplant. At her one year birthday, not only had 75% of Lexi's small intestines grown back...but she was ALIVE!!! The doctors said she wouldn't live to see her first birthday:) Now we have another "Great News Moment"! Lexis upper respiratory culture came back completely negative!
NEGATIVE!!!!!!!
I could shout it from a mountain!!
She has never had a completely negative lung culture. There was always at least a little mold, or a little Staph, or a little Pseudomonas. Most of the time all three.
We have made some tremendous sacrifices over the past few years. We have changed all of the products we used to unscented, we clean vigorously to prevent dust and bacteria from being in our home, and biggest/hardest of all... we ask our friends and family to do the same.
We really have focused on this more since Lexi's allergy testing in May. We had to change more products that we thought were unscented but still contained some allergy causing chemicals. We try very hard to avoid smoke outside and don't let people who have been smoking come in contact with Lexi. We don't go to homes where there have been inside animals. I even had my sitter this summer use shampoo, deodorant, soap, and lotion that I bought for her. She even put my clothes on to prevent her washing detergent from bothering Lexi...and guess what she was HAPPY to do it:) Thanks Kerri.
And guess what....thanks to our hard work diligently doing Lexi's treatments and the great people in our lives...IT HAS PAID OFF!!!!
Praising the Lord tonight...with out Him, Lexi wouldn't be here!
And as of now...she is healthier than ever!
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