The Steelers support CF

The Steelers are raising money for CF....Go team!

http://www.fearkeisel.com/

Exciting news for CF...

Exciting news in the medical industry for Cystic Fibrosis...Click and read the good news:)

http://prescriptions.blogs.nytimes.com/2011/02/23/vertex-says-cystic-fibrosis-drug-helped-patients-breathe-easier/?hpw

Wow...



Soooo...This is the equiptment that has to go with Lexi for her to spend just one night away from home.  This does not include normal stuff, like clothes or tooth brush.  You still interested in that sleep over!?

We are clear....

Our most recent blessing just came this week.  Lexi's upper repiratory cultures finalized this week from her most recent check up at UNC....NO PSEUDOMONAS AND NO STAPH!!!  This is a miracle that only God could perform.  Lexi has had pseudomonas bacteria growing in her lungs since she was 2 months old.  She developed aspiration pneumonia from her feeding tube and so it started.  Pseudomonas is very hard to get rid of, and virtually impossible once it has been growing for years.  God has been doing major work in our lives and this miracle is by his hands alone!  There is no credit that can be given to any medication!!  We now have had 4 cultures since last April to come back clear of Pseudo...so we are no doubt that it is GONE!!

Lexi has also cultured resistant Staph (much like the MRSA that is so bad) in her lungs for probably 3-4 years now.  This bacteria we also have been fighting madly with no results....once again, only God can take the credit.  This is our first culture with out Staph...but are trusting that this too is completely gone.

She did, however, culture a small amount of mold.  We have seen this off and on too for years, but not consistanly.

Just Praising the Lord today for such a beautiful day and wanted to share this news with you all:)

God is SOOO Good!

So...I have been wanting to start a blog for a while now, but just have not done so.  God is leading me in lots of different directions these days and this is one of them.  I want this blog to be a place where I can vent when life is overwhelming for me (which will be most day's), a place for family and friends to keep up with us and Lexi's health, but most importantly a place where I can share what God does for us on a daily basis.  Our story is filled with God's presence, healing, grace, and wonderful peace....I want this to glorify Him and hopefully touch someone's heart:)