Lexi's Angels Golf Tournament

Please join us for our first Cystic Fibrosis Golf Tournament Fundraiser.  It will be April 21, 2011, 12:00pm at Goldsboro Country Club.   The cost will be $50 per person, $250 per team, $100 to sponsor a hole, or just donate what you can for a GREAT cause.  There will be food, T-shirts, and prize money to win.  Don't miss out:)

A bit better:)

It has been a good couple of days.  I was concerned even after her check up that something was wrong.  Lexi's cough has never been this bad for this long and I was scared.  I did bite my lip and wait until Friday to call for her culture results.   BOOOOO, she is culturing ORSA (resistant staph).  However, her cough has continued to slowly improve.  Let's just all pray and agree that it will completely go away and the pollen will not affect her health. 

Thanks for your thoughts and prayers.

Unexpected visit...

Lexi had to go for an unexpected visit to UNC today.  She has had a cough since she was sick with the flu in Feb.  She has been on about 8-9 weeks of abx that don't seem to be working.  So...I was definitely nervous.  Nervous, because her cough sounds bad and b/c last year this time we were preparing for a hospital stay.

Thank the Lord....her appt did go well.  Her cough is just inflammation and irritation of her airways from the influenza virus.  Her pulmonary function test was good (96%) and her small airways are open.  Shewww...what a relief.  Dr. Leigh told us to give her body a break from the antibiotics and we will wait her lung culture results before starting anything new.

Thank goodness:)

How we spend our days!

As I was starting Lexi's vest this morning, I noticed the time appear on the screen.  It calculates the total time that the vest has run.  It read....you ready for this...1065 hours.  That totals to 44.3 entire days!!!  And she has only had this vest for 4.5 years.  This is what consumes our life....uugghh