Praising the Lord that we are home. We were discharged last night and I am pretty sure I got less sleep here than at the hospital...but doesn't matter...home is great!
They were unable to get a home health nurse to come out to the house until tomorrow (Thurs), but b/c we are IV experts...we could come on home. I don't mind being called an expert in anything...but in giving her child IV meds....not so much.
Her dosing schedule is 4am, 12noon, and 8pm. The infusion takes 2 hours...so no sleep for the weary. But that is ok...cause this is gonna make little Lexi well.
Her poor little arm is still in terrible shape. We had to change her bandage today b/c it was coming up on the edges and her sores had some drainage that made the bandage wet. It was one of the most awful experience ever!!! Lexi screamed, cried, and begged me to stop. She was in so much pain that she was twisting the sheets in her other hands and at one point was pulling her hair. IT WAS TERRIBLE!!! She was saying ouch, ohhh, Mommy please stop, it hurts so bad. I am terribly heart broken.
I have been really emotional this time for some reason. I cried at the clinic visit when they told us we had to go in, I cried as I left her as they put her to sleep, I cried when I saw her on oxygen in the recovery room, I cried on the way home last night, and of course today as I changed her dressing...sheeww. I will be glad when this is over.
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