I am such a planner, always have been. I am not much for surprises of any kind...good or bad. Maybe it is a control thing or maybe I just don't like the attention unexpected things bring. I am a routine type of gal. Thank God, Reed keeps me out of my rut..always in a good way:)
On the other hand, mother hood has brought about so many challenges that I never expected I could do or would have to do. Sleepless nights, nursing, diaper changes, cleaning up poop, pee, and vomit. Never with a pause or second thought.
CF, however has brought about so many things that Reed and I never imagined we would have to do. Feeding tubes, IV lines, oxygen lines, emptying and changing ostomy bags, giving shots, sterile dressing changes, grueling medication schedules, and isolating Lexi from things/people that can't or won't do what it takes to keep her healthy. All of these things have been so hard, but God has kept us strong. At the end of the day, you look back and wonder how in the world you managed. You just do what you have to do...I guess. Be smart about stuff first and let your heart and emotions always follow second.
Just when you think there can not possibly be anything new you will have to do...that day comes. Today is that day. I, for the first time, had to draw Lexi's blood. I don't know who was more nervous, me or Lexi. I don't know who was more upset as it was being done me, Reed, Lexi, or Gage.
Thank God it is over! At least until next week. Lexi has to have her blood count checked once a week while she is on these new antibiotics. Shewwww, I hope next week is easier. Prayers for us all, please.
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