Hi everyone...I know it has been a while, but I wanted to update you on Lexi's last several appointments. Things have not been the best in my life lately, but I am so thankful for what God does for us every day.
Lexi saw an ENT specialist in September. Things went much better than we expected. He went up her nose and into her sinuses with a scope and they looked pretty good. He did see some thick mucus but not a lot of inflammation and NO polyps. This is wonderful news to us. We were thinking that she might need sinus surgery in the near future...PRAISE THE LORD! He did increase her nasal spray and wants us to start doing sinus rinses several times a day...this we are still working on. The sinus rinses irritate her nose so badly. We are working on slowly increasing the frequency and will get there, I am sure.
Lexi had her regular check up with her CF Pulmonologist on Oct. 12th. This appt did not so well:( Her pulmonary function test was at her baseline normal...which is over 100%:)!!! Dr. Davis, however said that her lungs had ALOT of congestion. We decided to do an albuterol treatment and a second PFT to see if this made any difference. The albuterol opened her airways a lot, and did bring up her PFT score. This gave Dr. Davis the impression that Lexi has a lot more of an asthma component to her CF than we thought. NO GOOD, says me!!!! This means that all of those things, like fragrances, dust, animals, carpet, smoke....will just affect Lexi in a bad way....
Dr. Davis increased Lexi's Hypertonic Saline neb to 7% and I am to call back in the next week to let them know if it makes a difference in her cough....
Please keep us in you prayers that this works....not sure what the next step will be, but I do not want to be in the hospital for Thanksgiving or Christmas....
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