Lexi's CF appointment today went well.  She has had a lot of congestion and a pretty bad cough since Feb 2nd.  We were on 9 weeks of an oral antibiotic called Septra and are just finishing up about 1 more weeks worth of an inhaled antibiotic called Cayston.  Neither of these has done a lot for her this time.  I have been very concerned, and today made me very anxious.  All of her tests came back pretty good.  Her oxygen was fine, her lungs some what clear, and her pulmonary function test was good at 97%.  So where in the world is this cough coming from.  We are baffled and you know me, I am freaking out!  I will not stop until her cough is GONE!!  Whatever it takes....  I am not a side liner, nor am I passive about her treatment.  I probably worry those folks at UNC, but too bad:)  My motto is:  The harder we work now, the healthier she will be forever. 

We are gonna try again with the Septra because it normally works.  This time about 4-6 weeks and go from there. 

New news today was that Lexi will probably need sinus surgery in the next couple of years...yuck!!  Also our CF doctor, who I depend on sooooo deeply is leaving the country for 6 mos...WHAT!!!???  She is head of the Cystic Fibrosis Research Center and is going on a research sabbatical. 

Anyway...have a good day!  I have so much to say, but to tired physically and emotionally to continue:)